158 related articles for article (PubMed ID: 38140852)
21. A scoping review of core outcome sets and their 'mapping' onto real-world data using prostate cancer as a case study.
Meregaglia M; Ciani O; Banks H; Salcher-Konrad M; Carney C; Jayawardana S; Williamson P; Fattore G
BMC Med Res Methodol; 2020 Feb; 20(1):41. PubMed ID: 32103725
[TBL] [Abstract][Full Text] [Related]
22. The Italian multiple sclerosis register.
Trojano M; Bergamaschi R; Amato MP; Comi G; Ghezzi A; Lepore V; Marrosu MG; Mosconi P; Patti F; Ponzio M; Zaratin P; Battaglia MA;
Neurol Sci; 2019 Jan; 40(1):155-165. PubMed ID: 30426289
[TBL] [Abstract][Full Text] [Related]
23. Vitiligo International Task force for an Agreed List of core data (VITAL): study protocol of a vitiligo core outcome set (COS) and contextual factors for clinical trials, registries, and clinical practice.
van Geel N; Hamzavi IH; Pandya AG; Wolkerstorfer A; Seneschal J; Garg A; Spuls P; Terwee CB; Mallett S; Speeckaert R; Meurant JM; Eleftheriadou V; Ezzedine K
Trials; 2022 Jul; 23(1):591. PubMed ID: 35871019
[TBL] [Abstract][Full Text] [Related]
24. Time to diagnosis in multiple sclerosis: Epidemiological data from the German Multiple Sclerosis Registry.
Blaschke SJ; Ellenberger D; Flachenecker P; Hellwig K; Paul F; Pöhlau D; Kleinschnitz C; Rommer PS; Rueger MA; Zettl UK; Stahmann A; Warnke C
Mult Scler; 2022 May; 28(6):865-871. PubMed ID: 34449299
[TBL] [Abstract][Full Text] [Related]
25. Brain health: time matters in multiple sclerosis.
Giovannoni G; Butzkueven H; Dhib-Jalbut S; Hobart J; Kobelt G; Pepper G; Sormani MP; Thalheim C; Traboulsee A; Vollmer T
Mult Scler Relat Disord; 2016 Sep; 9 Suppl 1():S5-S48. PubMed ID: 27640924
[TBL] [Abstract][Full Text] [Related]
26. Prospects for research in haemophilia with real-world data-An analysis of German registry and secondary data.
Schopohl D; Bidlingmaier C; Herzig D; Klamroth R; Kurnik K; Rublee D; Schramm W; Schwarzkopf L; Berger K
Haemophilia; 2018 Jul; 24(4):584-594. PubMed ID: 29488669
[TBL] [Abstract][Full Text] [Related]
27. Development of a Bariatric Surgery Core Data Set for an International Registry.
Coulman KD; Chalmers K; Blazeby J; Dixon J; Kow L; Liem R; Pournaras DJ; Ottosson J; Welbourn R; Brown W; Avery K
Obes Surg; 2023 May; 33(5):1463-1475. PubMed ID: 36959437
[TBL] [Abstract][Full Text] [Related]
28. Validating the portal population of the United Kingdom Multiple Sclerosis Register.
Middleton RM; Rodgers WJ; Chataway J; Schmierer K; Rog D; Galea I; Akbari A; Tuite-Dalton K; Lockhart-Jones H; Griffiths D; Noble DG; Jones KH; Al-Din A; Craner M; Evangelou N; Harman P; Harrower T; Hobart J; Husseyin H; Kasti M; Kipps C; McDonnell G; Owen C; Pearson O; Rashid W; Wilson H; Ford DV
Mult Scler Relat Disord; 2018 Aug; 24():3-10. PubMed ID: 29860199
[TBL] [Abstract][Full Text] [Related]
29. [Databases in neurological diseases: overview of international examples in multiple sclerosis].
Iljicsov A; Simó M; Tegze N; Szócska M; Mátyus P; Bereczki D
Orv Hetil; 2019 Jan; 160(4):123-130. PubMed ID: 30661380
[TBL] [Abstract][Full Text] [Related]
30. Developing Patient-Centered Real-World Evidence: Emerging Methods Recommendations From a Consensus Process.
Oehrlein EM; Schoch S; Burcu M; McBeth JF; Bright J; Pashos CL; Willke R; Love TR; Mattingly TJ; Perfetto EM;
Value Health; 2023 Jan; 26(1):28-38. PubMed ID: 35863944
[TBL] [Abstract][Full Text] [Related]
31. VHA Multiple Sclerosis Surveillance Registry and its similarities to other contemporary multiple sclerosis cohorts.
Culpepper WJ; Wallin MT; Magder LS; Perencevich E; Royal W; Bradham DD; Cutter G; Bever CT
J Rehabil Res Dev; 2015; 52(3):263-72. PubMed ID: 26220064
[TBL] [Abstract][Full Text] [Related]
32. Data harmonization for collaborative research among MS registries: A case study in employment.
Salter A; Stahmann A; Ellenberger D; Fneish F; Rodgers WJ; Middleton R; Nicholas R; Marrie RA
Mult Scler; 2021 Feb; 27(2):281-289. PubMed ID: 32163003
[TBL] [Abstract][Full Text] [Related]
33. Preliminary Attainability Assessment of Real-World Data for Answering Major Clinical Research Questions in Breast Cancer Brain Metastasis: Framework Development and Validation Study.
Kim MJ; Kim HJ; Kang D; Ahn HK; Shin SY; Park S; Cho J; Park YH
J Med Internet Res; 2023 Mar; 25():e43359. PubMed ID: 36951923
[TBL] [Abstract][Full Text] [Related]
34. International severe asthma registry (ISAR): protocol for a global registry.
FitzGerald JM; Tran TN; Alacqua M; Altraja A; Backer V; Bjermer L; Bjornsdottir U; Bourdin A; Brusselle G; Bulathsinhala L; Busby J; Canonica GW; Carter V; Chaudhry I; Cho YS; Christoff G; Cosio BG; Costello RW; Eleangovan N; Gibson PG; Heaney LG; Heffler E; Hew M; Hosseini N; Iwanaga T; Jackson DJ; Jones R; Koh MS; Le T; Lehtimäki L; Ludviksdottir D; Maitland-van der Zee AH; Menzies-Gow A; Murray RB; Papadopoulos NG; Perez-de-Llano L; Peters M; Pfeffer PE; Popov TA; Porsbjerg CM; Price CA; Rhee CK; Sadatsafavi M; Tohda Y; Wang E; Wechsler ME; Zangrilli J; Price DB
BMC Med Res Methodol; 2020 Aug; 20(1):212. PubMed ID: 32819285
[TBL] [Abstract][Full Text] [Related]
35. Assess, compare and enhance the status of Persons with Multiple Sclerosis (MS) in Europe: a European Register for MS.
Pugliatti M; Eskic D; Mikolcić T; Pitschnau-Michel D; Myhr KM; Sastre-Garriga J; Otero S; Wieczynska L; Torje C; Holloway E; Rienhoff O; Friede T; Buckow K; Ellenberger D; Hillert J; Glaser A; Flachenecker P; Fuge J; Schyns-Liharska T; Kasilingam E; Moretti A; Thalheim C;
Acta Neurol Scand Suppl; 2012; (195):24-30. PubMed ID: 23278653
[TBL] [Abstract][Full Text] [Related]
36. Cardiac arrest and cardiopulmonary resuscitation outcome reports: update and simplification of the Utstein templates for resuscitation registries. A statement for healthcare professionals from a task force of the international liaison committee on resuscitation (American Heart Association, European Resuscitation Council, Australian Resuscitation Council, New Zealand Resuscitation Council, Heart and Stroke Foundation of Canada, InterAmerican Heart Foundation, Resuscitation Council of Southern Africa).
Jacobs I; Nadkarni V; Bahr J; Berg RA; Billi JE; Bossaert L; Cassan P; Coovadia A; D'Este K; Finn J; Halperin H; Handley A; Herlitz J; Hickey R; Idris A; Kloeck W; Larkin GL; Mancini ME; Mason P; Mears G; Monsieurs K; Montgomery W; Morley P; Nichol G; Nolan J; Okada K; Perlman J; Shuster M; Steen PA; Sterz F; Tibballs J; Timerman S; Truitt T; Zideman D;
Resuscitation; 2004 Dec; 63(3):233-49. PubMed ID: 15582757
[TBL] [Abstract][Full Text] [Related]
37. Cardiac arrest and cardiopulmonary resuscitation outcome reports: update and simplification of the Utstein templates for resuscitation registries: a statement for healthcare professionals from a task force of the International Liaison Committee on Resuscitation (American Heart Association, European Resuscitation Council, Australian Resuscitation Council, New Zealand Resuscitation Council, Heart and Stroke Foundation of Canada, InterAmerican Heart Foundation, Resuscitation Councils of Southern Africa).
Jacobs I; Nadkarni V; Bahr J; Berg RA; Billi JE; Bossaert L; Cassan P; Coovadia A; D'Este K; Finn J; Halperin H; Handley A; Herlitz J; Hickey R; Idris A; Kloeck W; Larkin GL; Mancini ME; Mason P; Mears G; Monsieurs K; Montgomery W; Morley P; Nichol G; Nolan J; Okada K; Perlman J; Shuster M; Steen PA; Sterz F; Tibballs J; Timerman S; Truitt T; Zideman D; ; ; ; ; ; ; ; ;
Circulation; 2004 Nov; 110(21):3385-97. PubMed ID: 15557386
[TBL] [Abstract][Full Text] [Related]
38. Minimum Core Data Elements for Evaluation of TAVR: A Scientific Statement by PASSION CV, HVC, and TVT Registry.
Simonato M; Vemulapalli S; Ben-Yehuda O; Wu C; Wood L; Popma J; Feldman T; Krohn C; Hardy KM; Guibone K; Christensen B; Alu MC; Chen S; Ng VG; Chau KH; Shahim B; Vincent F; MacMahon J; James S; Mack M; Leon MB; Thourani VH; Carroll J; Krucoff M
JACC Cardiovasc Interv; 2022 Apr; 15(7):685-697. PubMed ID: 35367168
[TBL] [Abstract][Full Text] [Related]
39. Minimum Core Data Elements for Evaluation of TAVR: A Scientific Statement by PASSION CV, HVC, and TVT Registry.
Simonato M; Vemulapalli S; Ben-Yehuda O; Wu C; Wood L; Popma J; Feldman T; Krohn C; Hardy KM; Guibone K; Christensen B; Alu MC; Chen S; Ng VG; Chau KH; Shahim B; Vincent F; MacMahon J; James S; Mack M; Leon MB; Thourani VH; Carroll J; Krucoff M
Ann Thorac Surg; 2022 May; 113(5):1730-1742. PubMed ID: 35367049
[TBL] [Abstract][Full Text] [Related]
40. Landscape of MS patient cohorts and registries: Recommendations for maximizing impact.
Bebo BF; Fox RJ; Lee K; Utz U; Thompson AJ
Mult Scler; 2018 Apr; 24(5):579-586. PubMed ID: 28279128
[TBL] [Abstract][Full Text] [Related]
[Previous] [Next] [New Search]
