199 related articles for article (PubMed ID: 38637879)
1. "Quality of Life in Epidermolysis Bullosa" and "Epidermolysis Bullosa Burden of Disease": Italian translation, cultural adaptation, and pilot testing of two disease-specific questionnaires.
Hachem ME; Diociaiuti A; Zambruno G; Samela T; Ferretti F; Carnevale C; Linertová R; Bodemer C; Murrell DF; Abeni D
Ital J Pediatr; 2024 Apr; 50(1):76. PubMed ID: 38637879
[TBL] [Abstract][Full Text] [Related]
2. Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses.
El Hachem M; Abeni D; Diociaiuti A; Rotunno R; Gesualdo F; Zambruno G; Bodemer C
Ital J Pediatr; 2019 Feb; 45(1):26. PubMed ID: 30782190
[TBL] [Abstract][Full Text] [Related]
3. Hindi translation and validation of quality of life score in Indian patients with epidermolysis bullosa; and its correlation with the clinical severity assessment scores: A cross-sectional study.
Bishnoi A; Manjunath S; Kishore K; De D; Handa S; Murrell DF; Mahajan R
Indian J Dermatol Venereol Leprol; 2022; 88(2):177-183. PubMed ID: 34491666
[TBL] [Abstract][Full Text] [Related]
4. Translation, cross-cultural adaptation and validation of the Quality of Life Evaluation in Epidermolysis Bullosa instrument in Brazilian Portuguese.
Cestari T; Prati C; Menegon DB; Prado Oliveira ZN; Machado MC; Dumet J; Nakano J; Murrell DF
Int J Dermatol; 2016 Feb; 55(2):e94-9. PubMed ID: 26474322
[TBL] [Abstract][Full Text] [Related]
5. Multidisciplinary care for patients with epidermolysis bullosa from birth to adolescence: experience of one Italian reference center.
Retrosi C; Diociaiuti A; De Ranieri C; Corbeddu M; Carnevale C; Giancristoforo S; Marchili MR; Salvatori G; Atti MLCD; El Hachem M; Raponi M
Ital J Pediatr; 2022 Apr; 48(1):58. PubMed ID: 35414096
[TBL] [Abstract][Full Text] [Related]
6. Epidermolysis Bullosa: Pediatric Perspectives.
Hon KL; Chu S; Leung AKC
Curr Pediatr Rev; 2022; 18(3):182-190. PubMed ID: 34036913
[TBL] [Abstract][Full Text] [Related]
7. Development and validation of an epidermolysis bullosa family/parental burden score.
Dufresne H; Hadj-Rabia S; Taieb C; Bodemer C
Br J Dermatol; 2015 Dec; 173(6):1405-10. PubMed ID: 26281012
[TBL] [Abstract][Full Text] [Related]
8. Quality of life in patients with epidermolysis bullosa.
Tabolli S; Sampogna F; Di Pietro C; Paradisi A; Uras C; Zotti P; Castiglia D; Zambruno G; Abeni D
Br J Dermatol; 2009 Oct; 161(4):869-77. PubMed ID: 19624546
[TBL] [Abstract][Full Text] [Related]
9. Translation, cultural adaptation and validation of the German Quality of Life in Epidermolysis Bullosa (QOLEB) questionnaire.
Salamon G; Strobl S; Field-Werners U; Welponer T; Murrell DF; Diem A
J Health Psychol; 2024 Feb; ():13591053231221369. PubMed ID: 38369713
[TBL] [Abstract][Full Text] [Related]
10. Investigational Treatments for Epidermolysis Bullosa.
Hou PC; Wang HT; Abhee S; Tu WT; McGrath JA; Hsu CK
Am J Clin Dermatol; 2021 Nov; 22(6):801-817. PubMed ID: 34292508
[TBL] [Abstract][Full Text] [Related]
11. Quality of life evaluation in epidermolysis bullosa (EB) through the development of the QOLEB questionnaire: an EB-specific quality of life instrument.
Frew JW; Martin LK; Nijsten T; Murrell DF
Br J Dermatol; 2009 Dec; 161(6):1323-30. PubMed ID: 19681875
[TBL] [Abstract][Full Text] [Related]
12. Oral health status in patients with inherited epidermolysis bullosa: a comparative multicenter study.
Joseph C; Marty M; Dridi SM; Verhaeghe V; Bailleul-Forestier I; Chiaverini C; Hubiche T; Mazereeuw-Hautier J; Deny O; Declerck D; Kémoun P
Quintessence Int; 2023 Jan; 54(1):34-43. PubMed ID: 36268944
[TBL] [Abstract][Full Text] [Related]
13. A global, cross-sectional survey of patient-reported outcomes, disease burden, and quality of life in epidermolysis bullosa simplex.
So JY; Fulchand S; Wong CY; Li S; Nazaroff J; Gorell ES; de Souza MP; Murrell DF; Teng JM; Chiou AS; Tang JY
Orphanet J Rare Dis; 2022 Jul; 17(1):270. PubMed ID: 35841105
[TBL] [Abstract][Full Text] [Related]
14. Transcultural Validation of a Spanish Version of the Quality of Life in Epidermolysis Bullosa Questionnaire.
Villar Hernández AR; Molero Alonso F; Aguado Marín ÁJ; Posada de la Paz M
Int J Environ Res Public Health; 2022 Jun; 19(12):. PubMed ID: 35742308
[TBL] [Abstract][Full Text] [Related]
15. Genetic diagnosis of epidermolysis bullosa: recommendations from an expert Spanish research group.
Sánchez-Jimeno C; Escámez MJ; Ayuso C; Trujillo-Tiebas MJ; Del Río M;
Actas Dermosifiliogr (Engl Ed); 2018 Mar; 109(2):104-122. PubMed ID: 29180129
[TBL] [Abstract][Full Text] [Related]
16. [Epidermolysis bullosa. An update].
Schumann H
Hautarzt; 2009 Aug; 60(8):614-21. PubMed ID: 19565201
[TBL] [Abstract][Full Text] [Related]
17. Clinical practice guidelines: Oral health care for children and adults living with epidermolysis bullosa.
Krämer S; Lucas J; Gamboa F; Peñarrocha Diago M; Peñarrocha Oltra D; Guzmán-Letelier M; Paul S; Molina G; Sepúlveda L; Araya I; Soto R; Arriagada C; Lucky AW; Mellerio JE; Cornwall R; Alsayer F; Schilke R; Antal MA; Castrillón F; Paredes C; Serrano MC; Clark V
Spec Care Dentist; 2020 Nov; 40 Suppl 1(Suppl 1):3-81. PubMed ID: 33202040
[TBL] [Abstract][Full Text] [Related]
18. Epidermolysis bullosa.
Bardhan A; Bruckner-Tuderman L; Chapple ILC; Fine JD; Harper N; Has C; Magin TM; Marinkovich MP; Marshall JF; McGrath JA; Mellerio JE; Polson R; Heagerty AH
Nat Rev Dis Primers; 2020 Sep; 6(1):78. PubMed ID: 32973163
[TBL] [Abstract][Full Text] [Related]
19. Family burden of children suffering from epidermolysis bullosa.
DE Stefano S; Grassi FS; Lalatta F; Scuvera G; Brena M; Grillo P; Peves Rios WE; Guez S
Ital J Dermatol Venerol; 2021 Oct; 156(5):580-587. PubMed ID: 33034432
[TBL] [Abstract][Full Text] [Related]
20. [Hereditary epidermolysis bullosa: French national guidelines (PNDS) for diagnosis and treatment].
Chiaverini C; Bourrat E; Mazereeuw-Hautier J; Hadj-Rabia S; Bodemer C; Lacour JP
Ann Dermatol Venereol; 2017 Jan; 144(1):6-35. PubMed ID: 27931749
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
