132 related articles for article (PubMed ID: 38720616)
1. Patient- and caregiver-reported impact of symptoms in Duchenne muscular dystrophy.
Rosero S; Weinstein J; Seabury J; Varma A; Dilek N; Zizzi C; Coffey M; Greco B; Heatwole J; Alexandrou D; Guntrum D; Ciafaloni E; Heatwole C
Muscle Nerve; 2024 Jul; 70(1):120-129. PubMed ID: 38720616
[TBL] [Abstract][Full Text] [Related]
2. Social difficulties and care burden of adult Duchenne muscular dystrophy in Japan: a questionnaire survey based on the Japanese Registry of Muscular Dystrophy (Remudy).
Mori-Yoshimura M; Ishigaki K; Shimizu-Motohashi Y; Ishihara N; Unuma A; Yoshida S; Nakamura H
Orphanet J Rare Dis; 2024 Apr; 19(1):182. PubMed ID: 38689355
[TBL] [Abstract][Full Text] [Related]
3. Psychometric properties of the Zarit Caregiver Burden Interview administered to caregivers to patients with Duchenne muscular dystrophy: a Rasch analysis.
Landfeldt E; Mayhew A; Straub V; Bushby K; Lochmüller H; Lindgren P
Disabil Rehabil; 2019 Apr; 41(8):966-973. PubMed ID: 29254382
[TBL] [Abstract][Full Text] [Related]
4. A qualitative study to understand the Duchenne muscular dystrophy experience from the parent/patient perspective.
Brown V; Merikle E; Johnston K; Gooch K; Audhya I; Lowes L
J Patient Rep Outcomes; 2023 Dec; 7(1):129. PubMed ID: 38085412
[TBL] [Abstract][Full Text] [Related]
5. Burden of Disease of Duchenne Muscular Dystrophy in Denmark - A National Register-Based Study of Individuals with Duchenne Muscular Dystrophy and their Closest Relatives.
Rudolfsen JH; Vissing J; Werlauff U; Olesen C; Illum N; Olsen J; Poulsen PB; Strand M; Born AP
J Neuromuscul Dis; 2024; 11(2):443-457. PubMed ID: 38217608
[TBL] [Abstract][Full Text] [Related]
6. "You Take This Day by Day, Come What May": A Qualitative Study of the Psychosocial Impacts of Living with Duchenne Muscular Dystrophy.
Bever A; Audhya I; Szabo SM; Mickle A; Feeny D; Malone D; Neumann P; Iannaccone S; Gooch K
Adv Ther; 2024 Jun; 41(6):2460-2476. PubMed ID: 38709395
[TBL] [Abstract][Full Text] [Related]
7. Duchenne muscular dystrophy and caregiver burden: a systematic review.
Landfeldt E; Edström J; Buccella F; Kirschner J; Lochmüller H
Dev Med Child Neurol; 2018 Oct; 60(10):987-996. PubMed ID: 29904912
[TBL] [Abstract][Full Text] [Related]
8. Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe.
Cavazza M; Kodra Y; Armeni P; De Santis M; López-Bastida J; Linertová R; Oliva-Moreno J; Serrano-Aguilar P; Posada-de-la-Paz M; Taruscio D; Schieppati A; Iskrov G; Péntek M; von der Schulenburg JM; Kanavos P; Chevreul K; Persson U; Fattore G;
Eur J Health Econ; 2016 Apr; 17 Suppl 1():19-29. PubMed ID: 27038625
[TBL] [Abstract][Full Text] [Related]
9. Quantifying the economic impact of caregiving for Duchenne muscular dystrophy (DMD) in Spain.
Flores D; Ribate MP; Montolio M; Ramos FJ; Gómez M; García CB
Eur J Health Econ; 2020 Sep; 21(7):1015-1023. PubMed ID: 32399780
[TBL] [Abstract][Full Text] [Related]
10. Psychological and practical difficulties among parents and healthy siblings of children with Duchenne vs. Becker muscular dystrophy: an Italian comparative study.
Magliano L; D'Angelo MG; Vita G; Pane M; D'Amico A; Balottin U; Angelini C; Battini R; Politano L; Patalano M; Sagliocchi A; Civati F; Brighina E; Vita GL; Messina S; Sframeli M; Lombardo ME; Scalise R; Colia G; Catteruccia M; Berardinelli A; Motta MC; Gaiani A; Semplicini C; Bello L; Astrea G; Zaccaro A; Scutifero M
Acta Myol; 2014 Dec; 33(3):136-43. PubMed ID: 25873782
[TBL] [Abstract][Full Text] [Related]
11. Quantifying the burden of caregiving in Duchenne muscular dystrophy.
Landfeldt E; Lindgren P; Bell CF; Guglieri M; Straub V; Lochmüller H; Bushby K
J Neurol; 2016 May; 263(5):906-915. PubMed ID: 26964543
[TBL] [Abstract][Full Text] [Related]
12. Patient-Reported Impact of Symptoms in Friedreich Ataxia.
Seabury J; Alexandrou D; Dilek N; Cohen B; Heatwole J; Larkindale J; Lynch DR; Park C; Rosero S; Subramony SH; Varma A; Wagner E; Walther S; Weinstein J; Wells M; Zizzi C; Heatwole C
Neurology; 2023 Feb; 100(8):e808-e821. PubMed ID: 36443012
[TBL] [Abstract][Full Text] [Related]
13. Is functional dependence of Duchenne muscular dystrophy patients determinant of the quality of life and burden of their caregivers?
de Moura MC; Wutzki HC; Voos MC; Resende MB; Reed UC; Hasue RH
Arq Neuropsiquiatr; 2015 Jan; 73(1):52-7. PubMed ID: 25608128
[TBL] [Abstract][Full Text] [Related]
14. Measuring Duchenne muscular dystrophy impact: development of a proxy-reported measure derived from PROMIS item banks.
Schwartz CE; Stark RB; Cella D; Borowiec K; Gooch KL; Audhya IF
Orphanet J Rare Dis; 2021 Nov; 16(1):487. PubMed ID: 34809687
[TBL] [Abstract][Full Text] [Related]
15. Toward patient-centered treatment goals for duchenne muscular dystrophy: insights from the "Your Voice" study.
Schwartz CE; Jackson S; Valentine J; Miller N; Lowes L; Edwards D; McSherry C; Savva D; Lowe A; McSherry J; Engel P
Orphanet J Rare Dis; 2023 Apr; 18(1):90. PubMed ID: 37081508
[TBL] [Abstract][Full Text] [Related]
16. A review of quality of life themes in Duchenne muscular dystrophy for patients and carers.
Uttley L; Carlton J; Woods HB; Brazier J
Health Qual Life Outcomes; 2018 Dec; 16(1):237. PubMed ID: 30567556
[TBL] [Abstract][Full Text] [Related]
17. Caregiver Burden with Duchenne and Becker Muscular Dystrophy in Japan: A Clinical Observation Study.
Ishizaki M; Kobayashi M; Hashimoto H; Nakamura A; Maeda Y; Ueyama H; Matsumura T
Intern Med; 2024 Feb; 63(3):365-372. PubMed ID: 37344421
[TBL] [Abstract][Full Text] [Related]
18. [DISEASE BURDEN OP DUCHENNE MUSCULAR DYSTROPHY PATIENTS AND THEIR CAREGIVERS].
Péntek M; Herczegfalvi Á; Molnár MJ; Szőnyi LP; Kosztolányi G; Pfliegler G; Melegh B; Boncz I; Brodszky V; Baji P; Szegedi M; Pogány G; Gulácsi L
Ideggyogy Sz; 2016 Mar; 69(5-6):183-93. PubMed ID: 27468608
[TBL] [Abstract][Full Text] [Related]
19. The experience of parents of adult sons with Duchenne muscular dystrophy regarding their prolonged roles as primary caregivers: a serial qualitative study.
Yamaguchi M; Sonoda E; Suzuki M
Disabil Rehabil; 2019 Apr; 41(7):746-752. PubMed ID: 29172756
[TBL] [Abstract][Full Text] [Related]
20. Development of the self-efficacy scale in caregivers of Duchenne muscular dystrophy patients.
Türken A; Çapar H; Çakmak C; Kurt ME; Menteş N
Work; 2024; 78(2):431-440. PubMed ID: 38143409
[TBL] [Abstract][Full Text] [Related]
[Next] [New Search]
