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  • Title: Barriers to accessing hospice services before a late terminal stage.
    Author: Johnson CB, Slaninka SC.
    Journal: Death Stud; 1999; 23(3):225-38. PubMed ID: 10848152.
    Abstract:
    Although hospice care has been available in the United States for over 25 years, the trend of late terminal access persists. Quality assessments and interventions that will continue through a year of bereavement are based on early interactions and the formation of caring and trusting bonds. A qualitative research study was conducted to identify and describe barriers to timely access as perceived by those involved in hospice care: caregivers, hospice staff and volunteers, and referring physicians. Major findings include persistent knowledge deficits including misconceptions and lack of awareness of components and skill associated with hospice care: reluctance to disclose, discuss, or acknowledge patient terminality, and access of hospice care being perceived as giving up on the patient.
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