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  • Title: Fathers' perspectives on the emotional impact of managing the care of their children with cystic fibrosis.
    Author: Hayes CC, Savage E.
    Journal: J Pediatr Nurs; 2008 Aug; 23(4):250-6. PubMed ID: 18638669.
    Abstract:
    In this article, fathers' perspectives on the emotional impact of managing the care of their children with cystic fibrosis (CF) are examined. The constant worry of living with the unpredictability of CF was highlighted in this study, drawing on interviews with eight Irish fathers, who experienced difficulties communicating their concerns to others. Despite efforts at not dwelling on CF, fathers described being surrounded by constant reminders. To minimize the emotional impact of managing their children's care, fathers described living from day to day rather than looking into the future. These findings demonstrate the need for supportive interventions in helping fathers manage the emotional demands of caring for their children with CF.
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