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  • Title: Advocating for a parent with dementia in a long-term care facility: the process experienced by daughters.
    Author: Legault A, Ducharme F.
    Journal: J Fam Nurs; 2009 May; 15(2):198-219. PubMed ID: 19307314.
    Abstract:
    Daughter caregivers of elders with dementia become their parents' advocates over time. This role takes on even greater importance when one or both parents are placed in a long-term care facility. This article presents the results of a qualitative study aimed at explaining how this advocacy role evolves following institutionalization. In-depth interviews were conducted with daughters (N = 14) of an institutionalized parent with dementia and selected using a theoretical sampling procedure. Data analysis using grounded theory revealed three interrelated processes that explain role transformation of the daughters: integration in the care setting, evaluation of quality of care, and development of trust. Implications for involving daughters as care partners in long-term care settings are offered.
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