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  • Title: Service and support needs of Australian carers supporting a family member with disability at home.
    Author: Burton-Smith R, McVilly KR, Yazbeck M, Parmenter TR, Tsutsui T.
    Journal: J Intellect Dev Disabil; 2009 Sep; 34(3):239-47. PubMed ID: 19681004.
    Abstract:
    BACKGROUND: As part of an international, multicentre project, the service and support needs of Australian family carers were investigated. METHOD: A sample of 1,390, 448 family carers completed a self-report survey, including an adaptation of the Family Needs Survey (FNS) and several open-ended questions. A mixed method design was used, employing quantitative and qualitative analyses. RESULTS: On the FNS the most frequently endorsed items were those relating to the need for information about services and, in particular, future, out-of-home accommodation. Similarly, the need for respite services was endorsed by over 80% of respondents. Comments indicated that access to and the quality of respite, day support, and therapy programs were a priority. CONCLUSIONS: Participants expressed the need for greater access to information. Access to appropriate respite options, together with quality day support and therapy services, remain a priority for family carers.
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