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Pubmed for Handhelds

PUBMED FOR HANDHELDS

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  • Title: Support requirements of parents caring for a child with disability and complex health needs.
    Author: Whiting M.
    Journal: Nurs Child Young People; 2014 May; 26(4):24-7. PubMed ID: 24805033.
    Abstract:
    AIM: To investigate the experiences of parents of children with complex health needs in relation to the help and support they receive when caring for their child. METHOD: A series of in-depth semi-structured interviews undertaken with the parents of 34 children (33 families) with a disability or a complex health need. Families were categorised into one of three subgroups: children with a disability, children with a life-limiting or life-threatening illness, or children with technology dependence. FINDINGS: In relation to parental experience of the need for help and support, two major categories were identified, namely 'people', and 'processes and resources', as well as a series of subcategories. Respite care was identified as the greatest unmet need. CONCLUSION: Parents identified a range of helping behaviours among key professional staff involved in support provision. The greatest area of unmet needs is for respite care.
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