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  • Title: The adaptation of a school-based health promotion programme for youth with intellectual and developmental disabilities: a community-engaged research process.
    Author: Hubbard KL, Bandini LG, Folta SC, Wansink B, Must A.
    Journal: J Appl Res Intellect Disabil; 2014 Nov; 27(6):576-90. PubMed ID: 24891118.
    Abstract:
    BACKGROUND: Evidenced-based health promotion programmes for youth with intellectual and developmental disabilities (I/DD) are notably absent. Barriers include a lack of understanding of how to adapt existing evidence-based programmes to their needs, maximize inclusion and support mutual goals of health and autonomy. METHODS: We undertook a community-engaged process to adapt a school-based nutrition intervention in a residential school for youth with I/DD. Focus groups and interviews with school staff elicited recommendations for adaptation strategies; these were then reviewed by an expert panel. RESULTS: Adaptations were developed to address needs in three categories: food-related challenges among students, adjusting to change and transition and social environment factors. Choice and heterogeneity were overarching themes across the adaptation categories. CONCLUSIONS: Future research should consider community-engaged approaches for adaptation so that youth with I/DD can participate and benefit from evidence-based health promotion programmes to their maximum potential.
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