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  • Title: Ethical decision making for high-risk infants. The parents' perspective.
    Author: Pinch WJ, Spielman ML.
    Journal: Nurs Clin North Am; 1989 Dec; 24(4):1017-23. PubMed ID: 2685770.
    Abstract:
    The experiences of 32 families with high-risk infants provide the foundation for a discussion of the parents' perception of the ethical dimension of intensive newborn care. The families' focus on the need for support in the NICU crisis rather than a plea for rights, justice, and autonomous decision making leads to a suggested professional response guided by an ethic of care. Through a caring professional, ethical decision making in the NICU can be implemented to encompass a shared moral responsibility for the high-risk infant during this process.
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