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  • Title: [Psychological follow-up study of families of children with acute lymphoblastic leukemia].
    Author: Jacobsen A, Clausen N.
    Journal: Ugeskr Laeger; 1989 Oct 09; 151(41):2656-60. PubMed ID: 2815379.
    Abstract:
    The qualities of the multi-disciplinary social, psychological, medical and nursing contributions for children diagnosed consecutively as having acute lymphoblastic leukaemia and their families were investigated. The parents of a total of 39 children, 31 fathers and 36 mothers, participated in a semi-structured interview with the psychologist attached to the department concerning the extent to which the psycho-social requirements of the family had been met by offers from the hospital. The interview concerning the diagnosis took place equally frequently in local hospitals and in Rigshospitalet. In both of these locations only half of the parent couples were satisfied with the course of the conversation. In the course of the disease, the mothers and the fathers experienced three situations differently: the situation at work, the parents' married life and the responsibility for treatment of the child. The family dynamic situation was altered in all of the families. Parents developed a closer relationship to the sick child while the relationship to the siblings equally frequently improved or deteriorated. At the conclusion of treatment, 2/3 felt that a form of security disappeared even though they were pleased to have got so far. In cases with relapse, another crisis developed and was just as difficult as the first, regardless of whether attempts had been made to prepare the families for this possibility. This investigation has pointed out a series of circumstances which the therapeutic system should be familiar with and which they can be prepared for.
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