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  • Title: Perceived caregiving preparedness and quality of life among Indonesian family caregivers of patients with life-limiting illness.
    Author: Rochmawati E, Prawitasari Y.
    Journal: Int J Palliat Nurs; 2021 Aug 02; 27(6):293-301. PubMed ID: 34459242.
    Abstract:
    BACKGROUND: Family caregivers play an important role in palliative care. However, family caregivers often report that they felt insufficiently prepared to become a caregiver. This lack of preparedness may lead to a decline in the caregiver's quality of life (QoL), and they may not be able to provide sufficient palliative care to their family member. AIMS: To investigate the preparedness of family members to become caregivers alongside their QoL. METHOD: A correlational cross-sectional study design was used. A sample of 104 family caregivers completed a World Health Organization Quality of Life Brief to assess the QoL of participants. The Caregiving Inventory (CGI) was used to assess how prepared family members felt to become care-givers, and the CGI also included questions related to the patient's socio-demographic status and illness. Correlation analysis was used to address the research questions. Caregivers were caring for a family member with a life-limiting illness in a suburban district of Indonesia. FINDINGS: The 104 family caregivers had a relatively low score for both QoL and caregiving preparedness. A caregiver feeling more prepared was associated with a higher QoL. The study also found a positive correlation (r value, between 0.236-0.481) between perceived caregiving preparedness, including its factors, and domains of QoL. CONCLUSION: A person's preparedness to become a caregiver is significantly associated with all QoL domains: physical, psychological, social and environmental. Family members can be better prepared to become a caregiver with training and information about personal care and symptom management.
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