These tools will no longer be maintained as of December 31, 2024. Archived website can be found here. PubMed4Hh GitHub repository can be found here. Contact NLM Customer Service if you have questions.


Pubmed for Handhelds

PUBMED FOR HANDHELDS

Search MEDLINE/PubMed

  • Title: [Managing life and death wishes of invasively ventilated amyotrophic lateral sclerosis patients].
    Author: Winterholler M, Erbguth F, Rechlin T, Neundörfer B.
    Journal: Med Klin (Munich); 1997 Apr 28; 92 Suppl 1():90-2. PubMed ID: 9235485.
    Abstract:
    BACKGROUND: Find of life decisions of patients with amyotrophic lateral sclerosis and respiratory failure are influenced by several environmental factors. PATIENTS AND METHODS: We describe the course of disease and decision making of four of these patients. RESULTS: Most decisions have been inconsistent and were seen to be depending on actual situations. Main factors were: 1. preclinically (before respiratory failure) medical information, 2. during respirator dependency in the hospital's intensive care unit the clinical setting and the individual perspective depending on the patient's private situation, 3. at home ventilation the family's situation and conflicts. Especially the patients requests for disconnection from the respirator overtaxed their carers capacities. CONCLUSION: We conclude that there is need for professional psychosocial intervention for the patients and their families.
    [Abstract] [Full Text] [Related] [New Search]