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Journal Abstract Search

147 related items for PubMed ID: 27245777

  • 21. Evaluation of quality of life in PKU before and after introducing tetrahydrobiopterin (BH4); a prospective multi-center cohort study.
    Demirdas S, Maurice-Stam H, Boelen CC, Hofstede FC, Janssen MC, Langendonk JG, Mulder MF, Rubio-Gozalbo ME, van Spronsen FJ, de Vries M, Grootenhuis MA, Bosch AM.
    Mol Genet Metab; 2013; 110 Suppl():S49-56. PubMed ID: 24100246
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  • 22. Child and parent attributions in chronic pediatric conditions: phenylketonuria (PKU) as an exemplar.
    Antshel KM, Brewster S, Waisbren SE.
    J Child Psychol Psychiatry; 2004 Mar; 45(3):622-30. PubMed ID: 15055380
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  • 23. Parenting a Child with Phenylketonuria (PKU): an Interpretative Phenomenological Analysis (IPA) of the Experience of Parents.
    Carpenter K, Wittkowski A, Hare DJ, Medford E, Rust S, Jones SA, Smith DM.
    J Genet Couns; 2018 Sep; 27(5):1074-1086. PubMed ID: 29468336
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  • 24. Caring for a Child with Phenylketonuria: Parental Experiences from a Eurasian Country.
    Zengin Akkus P, Bilginer Gurbuz B, Ciki K, Ilter Bahadur E, Karahan S, Ozmert EN, Coskun T, Sivri S.
    J Dev Behav Pediatr; 2020 Apr; 41(3):195-202. PubMed ID: 31688717
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  • 25. Coping with PKU: results of narrative interviews with parents.
    Awiszus D, Unger I.
    Eur J Pediatr; 1990 Apr; 149 Suppl 1():S45-51. PubMed ID: 2091931
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  • 26. What factors influence parents' perception of the quality of life of children and adolescents with neurocardiogenic syncope?
    Grimaldi Capitello T, Fiorilli C, Placidi S, Vallone R, Drago F, Gentile S.
    Health Qual Life Outcomes; 2016 May 17; 14():79. PubMed ID: 27188269
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  • 27. "I Feel Lucky" - Gratitude Among Young Adults with Phenylketonuria (PKU).
    Diesen PS.
    J Genet Couns; 2016 Oct 17; 25(5):1002-9. PubMed ID: 26888542
    [Abstract] [Full Text] [Related]

  • 28. Using the impact of event scale to evaluate psychological response to being a phenylketonuria gene carrier.
    Read CY.
    J Genet Couns; 2004 Jun 17; 13(3):207-19. PubMed ID: 15604632
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  • 30. Family conditions and dietary control in phenylketonuria.
    Olsson GM, Montgomery SM, Alm J.
    J Inherit Metab Dis; 2007 Oct 17; 30(5):708-15. PubMed ID: 17570079
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  • 36. Food acceptance and neophobia in children with phenylketonuria: a prospective controlled study.
    Evans S, Daly A, Chahal S, MacDonald J, MacDonald A.
    J Hum Nutr Diet; 2016 Aug 17; 29(4):427-33. PubMed ID: 26510709
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  • 39. Adult patient perspectives on phenylketonuria care: Highlighting the need for dedicated adult management and services.
    Suddaby JS, Sohaei D, Bell H, Tavares S, Lee GJ, Szybowska M, So J.
    Eur J Med Genet; 2020 Apr 17; 63(4):103818. PubMed ID: 31778858
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  • 40. Parental problem-solving skills, stress, and dietary compliance in phenylketonuria.
    Fehrenbach AM, Peterson L.
    J Consult Clin Psychol; 1989 Apr 17; 57(2):237-41. PubMed ID: 2708611
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