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Journal Abstract Search

197 related items for PubMed ID: 28645270

  • 1. Qualitative modification and development of patient- and caregiver-reported outcome measures for iron chelation therapy.
    Horodniceanu EG, Bal V, Dhatt H, Carter JA, Huang V, Lasch K.
    Health Qual Life Outcomes; 2017 Jun 23; 15(1):129. PubMed ID: 28645270
    [Abstract] [Full Text] [Related]

  • 2. Patient-reported outcomes from a randomized phase II study of the deferasirox film-coated tablet in patients with transfusion-dependent anemias.
    Taher AT, Origa R, Perrotta S, Kouraklis A, Ruffo GB, Kattamis A, Goh AS, Huang V, Zia A, Herranz RM, Porter JB.
    Health Qual Life Outcomes; 2018 Nov 19; 16(1):216. PubMed ID: 30453981
    [Abstract] [Full Text] [Related]

  • 3. Qualitative exploration of the visual function impairments and impacts on vision-dependent activities of daily living in Retinitis Pigmentosa and Leber Congenital Amaurosis: content validation of the ViSIO-PRO and ViSIO-ObsRO measures.
    Kay C, Audo I, Naujoks C, Spera C, Fischer MD, Green J, Durham T, Williamson N, Bradley H, Barclay M, Sims J, Banhazi J, Patalano F.
    J Patient Rep Outcomes; 2023 Jul 19; 7(1):74. PubMed ID: 37466759
    [Abstract] [Full Text] [Related]

  • 4. Assessing asthma symptoms in children: qualitative research supporting the development of the Pediatric Asthma Diary-Child (PAD-C) and Pediatric Asthma Diary-Observer (PAD-O).
    Bradley H, Trennery C, Jones AM, Lydon A, White F, Williams-Hall R, Arbuckle R, Tomaszewski E, Shih VH, Haughney J, Eisen A, Winders T, Coons SJ, Eremenco S, Patient-Reported Outcome Consortium’s Pediatric Asthma Working Group.
    J Patient Rep Outcomes; 2023 Oct 20; 7(1):104. PubMed ID: 37863864
    [Abstract] [Full Text] [Related]

  • 5. Development of a signs and symptoms outcome measure for caregivers of patients with methylmalonic acidemia and propionic acidemia (MMAPAQ).
    Sikirica V, Schwartz EJ, Vockley J, Stagni K, Bellenger MA, Banerjee G, Durgam N, Moshkovich O.
    Mol Genet Metab; 2024 Oct 20; 143(1-2):108577. PubMed ID: 39303317
    [Abstract] [Full Text] [Related]

  • 6. Development of the Patient- and Observer-Reported PRUCISION Instruments to Assess Pruritus and Sleep Disturbance in Pediatric Patients with Cholestatic Liver Diseases.
    Gwaltney C, Bean S, Venerus M, Karlsson L, Warholic N, Kjems L, Horn P.
    Adv Ther; 2022 Nov 20; 39(11):5126-5143. PubMed ID: 36066744
    [Abstract] [Full Text] [Related]

  • 7. Content validity of a novel patient-reported and observer-reported outcomes assessment to evaluate ocular symptoms associated with infectious conjunctivitis in both adult and pediatric populations.
    Sarda SP, De La Cruz M, Flood EM, Vanya M, Hwang DG, Ta CN, Narvekar A.
    Health Qual Life Outcomes; 2019 Oct 30; 17(1):163. PubMed ID: 31666074
    [Abstract] [Full Text] [Related]

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  • 9. A new tool for the assessment of satisfaction with iron chelation therapy (ICT-Sat) for patients with β-thalassemia major.
    Elalfy MS, Massoud W, Elsherif NH, Labib JH, Elalfy OM, Elaasar S, von Mackensen S.
    Pediatr Blood Cancer; 2012 Jun 30; 58(6):910-5. PubMed ID: 22232075
    [Abstract] [Full Text] [Related]

  • 10. Measuring dengue illness intensity: Development and content validity of the dengue virus daily diary (DENV-DD).
    Jones AM, Saretsky TL, Panter C, Wells JR, White F, Smith V, Kendal H, Russell K, Ruggieri M, Calhoun SR, Gater A, O'Hagan J, Anderson KB, Paz-Soldan VA, Morrison AC, Ware L, Klick M, Thomas S, Marks MA.
    J Patient Rep Outcomes; 2023 Aug 23; 7(1):84. PubMed ID: 37610665
    [Abstract] [Full Text] [Related]

  • 11. Iron overload in lower international prognostic scoring system risk patients with myelodysplastic syndrome receiving red blood cell transfusions: Relation to infections and possible benefit of iron chelation therapy.
    Wong CAC, Wong SAY, Leitch HA.
    Leuk Res; 2018 Apr 23; 67():75-81. PubMed ID: 29477023
    [Abstract] [Full Text] [Related]

  • 12. Overall survival in lower IPSS risk MDS by receipt of iron chelation therapy, adjusting for patient-related factors and measuring from time of first red blood cell transfusion dependence: an MDS-CAN analysis.
    Leitch HA, Parmar A, Wells RA, Chodirker L, Zhu N, Nevill TJ, Yee KWL, Leber B, Keating MM, Sabloff M, St Hilaire E, Kumar R, Delage R, Geddes M, Storring JM, Kew A, Shamy A, Elemary M, Lenis M, Mamedov A, Ivo J, Francis J, Zhang L, Buckstein R.
    Br J Haematol; 2017 Oct 23; 179(1):83-97. PubMed ID: 28677895
    [Abstract] [Full Text] [Related]

  • 13. Validation of the PRUCISION Instruments in Pediatric Patients with Progressive Familial Intrahepatic Cholestasis.
    Gwaltney C, Ivanescu C, Karlsson L, Warholic N, Kjems L, Horn P.
    Adv Ther; 2022 Nov 23; 39(11):5105-5125. PubMed ID: 36066745
    [Abstract] [Full Text] [Related]

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  • 15. Iron status and treatment modalities in transfusion-dependent patients with myelodysplastic syndromes.
    Delforge M, Selleslag D, Triffet A, Mineur P, Bries G, Graux C, Trullemans F, MacDonald K, Abraham I, Pluymers W, Ravoet C.
    Ann Hematol; 2011 Jun 23; 90(6):655-66. PubMed ID: 21318574
    [Abstract] [Full Text] [Related]

  • 16. Do Recent Randomized Trial Results Influence which Patients with Myelodysplastic Syndromes Receive Iron Chelation?
    Gattermann N.
    Hematol Oncol Clin North Am; 2020 Apr 23; 34(2):465-473. PubMed ID: 32089223
    [Abstract] [Full Text] [Related]

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  • 18. Hematologic improvement with iron chelation therapy in myelodysplastic syndromes: Clinical data, potential mechanisms, and outstanding questions.
    Leitch HA, Gattermann N.
    Crit Rev Oncol Hematol; 2019 Sep 23; 141():54-72. PubMed ID: 31228649
    [Abstract] [Full Text] [Related]

  • 19. Optimizing therapy for iron overload in the myelodysplastic syndromes: recent developments.
    Leitch HA.
    Drugs; 2011 Jan 22; 71(2):155-77. PubMed ID: 21275444
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