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Journal Abstract Search

167 related items for PubMed ID: 29651832

  • 1. Psychological wellbeing in parents of children with phenylketonuria and association with treatment adherence.
    Borghi L, Salvatici E, Banderali G, Riva E, Giovannini M, Vegni E.
    Minerva Pediatr (Torino); 2021 Aug; 73(4):330-339. PubMed ID: 29651832
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  • 7. Treatment Adherence and Psychological Wellbeing in Maternal Carers of Children with Phenylketonuria (PKU).
    Medford E, Hare DJ, Carpenter K, Rust S, Jones S, Wittkowski A.
    JIMD Rep; 2017 Aug; 37():107-114. PubMed ID: 28382600
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  • 8. Caring for a Child with Phenylketonuria: Parental Experiences from a Eurasian Country.
    Zengin Akkus P, Bilginer Gurbuz B, Ciki K, Ilter Bahadur E, Karahan S, Ozmert EN, Coskun T, Sivri S.
    J Dev Behav Pediatr; 2020 Apr; 41(3):195-202. PubMed ID: 31688717
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  • 9. Executive functions in preschool children with moderate hyperphenylalaninemia and phenylketonuria: a prospective study.
    Paermentier L, Cano A, Chabrol B, Roy A.
    Orphanet J Rare Dis; 2023 Jul 03; 18(1):175. PubMed ID: 37400895
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  • 12. "MY PKU": increasing self-management in patients with phenylketonuria. A randomized controlled trial.
    Ten Hoedt AE, Hollak CE, Boelen CC, van der Herberg-van de Wetering NA, Ter Horst NM, Jonkers CF, Wijburg FA, Bosch AM.
    Orphanet J Rare Dis; 2011 Jun 27; 6():48. PubMed ID: 21708003
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  • 14. The impact of metabolic control and tetrahydrobiopterin treatment on health related quality of life of patients with early-treated phenylketonuria: A PKU-COBESO study.
    Huijbregts SCJ, Bosch AM, Simons QA, Jahja R, Brouwers MCGJ, De Sonneville LMJ, De Vries MC, Hofstede FC, Hollak CEM, Janssen MCH, Langendonk JG, Rubio-Gozalbo ME, Van der Meere JJ, Van der Ploeg AT, Van Spronsen FJ.
    Mol Genet Metab; 2018 Sep 27; 125(1-2):96-103. PubMed ID: 30007854
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  • 15. Mental health and social functioning in early treated Phenylketonuria: the PKU-COBESO study.
    Jahja R, Huijbregts SC, de Sonneville LM, van der Meere JJ, Bosch AM, Hollak CE, Rubio-Gozalbo ME, Brouwers MC, Hofstede FC, de Vries MC, Janssen MC, van der Ploeg AT, Langendonk JG, van Spronsen FJ.
    Mol Genet Metab; 2013 Sep 27; 110 Suppl():S57-61. PubMed ID: 24183792
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  • 17. The Impact of a Slow-Release Large Neutral Amino Acids Supplement on Treatment Adherence in Adult Patients with Phenylketonuria.
    Burlina AP, Cazzorla C, Massa P, Loro C, Gueraldi D, Burlina AB.
    Nutrients; 2020 Jul 14; 12(7):. PubMed ID: 32674279
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  • 18. Impact of the phenylalanine hydroxylase gene on maternal phenylketonuria outcome.
    Güttler F, Azen C, Guldberg P, Romstad A, Hanley WB, Levy HL, Matalon R, Rouse BM, Trefz F, de la Cruz F, Koch R.
    Pediatrics; 2003 Dec 14; 112(6 Pt 2):1530-3. PubMed ID: 14654659
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  • 19. Parenting a Child with Phenylketonuria: An Investigation into the Factors That Contribute to Parental Distress.
    Ambler O, Medford E, Hare DJ.
    JIMD Rep; 2018 Dec 14; 41():91-100. PubMed ID: 29675588
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  • 20. Psychosocial functioning in children with phenylketonuria: Relationships between quality of life and parenting indicators.
    Morawska A, Mitchell AE, Etel E, Kirby G, McGill J, Coman D, Inwood A.
    Child Care Health Dev; 2020 Jan 14; 46(1):56-65. PubMed ID: 31782540
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