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Journal Abstract Search

291 related items for PubMed ID: 31230513

  • 1. Negotiating Requests for Reimbursement for Community Engagement: Challenges in Developing an Educational Video for Genomic Biobanking Research in South Africa.
    Staunton C, Abayomi A, Bassa F, Moodley K.
    J Empir Res Hum Res Ethics; 2019 Dec; 14(5):501-503. PubMed ID: 31230513
    [Abstract] [Full Text] [Related]

  • 2. Rules of engagement: perspectives on stakeholder engagement for genomic biobanking research in South Africa.
    Staunton C, Tindana P, Hendricks M, Moodley K.
    BMC Med Ethics; 2018 Feb 27; 19(1):13. PubMed ID: 29482536
    [Abstract] [Full Text] [Related]

  • 3. "It's all about trust": reflections of researchers on the complexity and controversy surrounding biobanking in South Africa.
    Moodley K, Singh S.
    BMC Med Ethics; 2016 Oct 10; 17(1):57. PubMed ID: 27724893
    [Abstract] [Full Text] [Related]

  • 4. Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries.
    de Vries J, Munung SN, Matimba A, McCurdy S, Ouwe Missi Oukem-Boyer O, Staunton C, Yakubu A, Tindana P, H3Africa Consortium.
    BMC Med Ethics; 2017 Feb 02; 18(1):8. PubMed ID: 28153006
    [Abstract] [Full Text] [Related]

  • 5. Engaging Māori in biobanking and genomic research: a model for biobanks to guide culturally informed governance, operational, and community engagement activities.
    Beaton A, Hudson M, Milne M, Port RV, Russell K, Smith B, Toki V, Uerata L, Wilcox P, Bartholomew K, Wihongi H.
    Genet Med; 2017 Mar 02; 19(3):345-351. PubMed ID: 27632687
    [Abstract] [Full Text] [Related]

  • 6. Tygerberg Research Ubuntu-Inspired Community Engagement Model: Integrating Community Engagement into Genomic Biobanking.
    Moodley K, Beyer C.
    Biopreserv Biobank; 2019 Dec 02; 17(6):613-624. PubMed ID: 31603696
    [Abstract] [Full Text] [Related]

  • 7. How Should Biobanking Be Governed in Low-Resource Settings?
    Yakubu A, Munung NS, De Vries J.
    AMA J Ethics; 2020 Feb 01; 22(2):E156-163. PubMed ID: 32048586
    [Abstract] [Full Text] [Related]

  • 8. Engaging research ethics committees to develop an ethics and governance framework for best practices in genomic research and biobanking in Africa: the H3Africa model.
    Tindana P, Yakubu A, Staunton C, Matimba A, Littler K, Madden E, Munung NS, de Vries J, as members of the H3Africa Consortium.
    BMC Med Ethics; 2019 Oct 18; 20(1):69. PubMed ID: 31623617
    [Abstract] [Full Text] [Related]

  • 9. Challenges in biobank governance in Sub-Saharan Africa.
    Staunton C, Moodley K.
    BMC Med Ethics; 2013 Sep 11; 14():35. PubMed ID: 24025667
    [Abstract] [Full Text] [Related]

  • 10. Broad Consent for Genomic Research and Biobanking: Perspectives from Low- and Middle-Income Countries.
    Tindana P, de Vries J.
    Annu Rev Genomics Hum Genet; 2016 Aug 31; 17():375-93. PubMed ID: 26905784
    [Abstract] [Full Text] [Related]

  • 11. Determining the state of guidance on pediatric biobanking for researchers, HRECS, and families: Regulatory mapping of international guidance.
    Prince S, Then SN, O'Grady KA.
    Eur J Pediatr; 2024 May 31; 183(5):2477-2490. PubMed ID: 38478133
    [Abstract] [Full Text] [Related]

  • 12. Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa.
    Singh S, Moodley K.
    BMC Med Ethics; 2021 Jul 01; 22(1):84. PubMed ID: 34210291
    [Abstract] [Full Text] [Related]

  • 13. Ethical considerations for biobanking and use of genomics data in Africa: a narrative review.
    Amoakoh-Coleman M, Vieira D, Abugri J.
    BMC Med Ethics; 2023 Dec 05; 24(1):108. PubMed ID: 38053109
    [Abstract] [Full Text] [Related]

  • 14. Ethical issues in the export, storage and reuse of human biological samples in biomedical research: perspectives of key stakeholders in Ghana and Kenya.
    Tindana P, Molyneux CS, Bull S, Parker M.
    BMC Med Ethics; 2014 Oct 18; 15():76. PubMed ID: 25326753
    [Abstract] [Full Text] [Related]

  • 15. Challenges of biobanking in South Africa to facilitate indigenous research in an environment burdened with human immunodeficiency virus, tuberculosis, and emerging noncommunicable diseases.
    Abayomi A, Christoffels A, Grewal R, Karam LA, Rossouw C, Staunton C, Swanepoel C, van Rooyen B.
    Biopreserv Biobank; 2013 Dec 18; 11(6):347-54. PubMed ID: 24835364
    [Abstract] [Full Text] [Related]

  • 16. Ethical challenges in biobanking: moving the agenda forward in India.
    Vaz M, Vaz M, Srinivasan K.
    Indian J Med Ethics; 2014 Apr 01; 11(2):79-88. PubMed ID: 24727618
    [Abstract] [Full Text] [Related]

  • 17. Consent and research governance in biobanks: evidence from focus groups with medical researchers.
    Whitley EA, Kanellopoulou N, Kaye J.
    Public Health Genomics; 2012 Apr 01; 15(5):232-42. PubMed ID: 22722687
    [Abstract] [Full Text] [Related]

  • 18. Balancing the local and the universal in maintaining ethical access to a genomics biobank.
    Heeney C, Kerr SM.
    BMC Med Ethics; 2017 Dec 28; 18(1):80. PubMed ID: 29282045
    [Abstract] [Full Text] [Related]

  • 19. [Ethical review of biobanks in The Netherlands: lessons from the String of Pearls Initiative].
    Boeckhout M, van Dijk J, Legemate DA.
    Ned Tijdschr Geneeskd; 2011 Dec 28; 155(26):A3557. PubMed ID: 21767425
    [Abstract] [Full Text] [Related]

  • 20. 'It is an entrustment': Broad consent for genomic research and biobanks in sub-Saharan Africa.
    Tindana P, Molyneux S, Bull S, Parker M.
    Dev World Bioeth; 2019 Mar 28; 19(1):9-17. PubMed ID: 29063669
    [Abstract] [Full Text] [Related]

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