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254 related items for PubMed ID: 38478133

  • 1. Determining the state of guidance on pediatric biobanking for researchers, HRECS, and families: Regulatory mapping of international guidance.
    Prince S, Then SN, O'Grady KA.
    Eur J Pediatr; 2024 May; 183(5):2477-2490. PubMed ID: 38478133
    [Abstract] [Full Text] [Related]

  • 2. Challenges in biobank governance in Sub-Saharan Africa.
    Staunton C, Moodley K.
    BMC Med Ethics; 2013 Sep 11; 14():35. PubMed ID: 24025667
    [Abstract] [Full Text] [Related]

  • 3. "It's all about trust": reflections of researchers on the complexity and controversy surrounding biobanking in South Africa.
    Moodley K, Singh S.
    BMC Med Ethics; 2016 Oct 10; 17(1):57. PubMed ID: 27724893
    [Abstract] [Full Text] [Related]

  • 4. Ethical challenges in biobanking: moving the agenda forward in India.
    Vaz M, Vaz M, Srinivasan K.
    Indian J Med Ethics; 2014 Apr 01; 11(2):79-88. PubMed ID: 24727618
    [Abstract] [Full Text] [Related]

  • 5. Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries.
    de Vries J, Munung SN, Matimba A, McCurdy S, Ouwe Missi Oukem-Boyer O, Staunton C, Yakubu A, Tindana P, H3Africa Consortium.
    BMC Med Ethics; 2017 Feb 02; 18(1):8. PubMed ID: 28153006
    [Abstract] [Full Text] [Related]

  • 6. Consent and research governance in biobanks: evidence from focus groups with medical researchers.
    Whitley EA, Kanellopoulou N, Kaye J.
    Public Health Genomics; 2012 Feb 02; 15(5):232-42. PubMed ID: 22722687
    [Abstract] [Full Text] [Related]

  • 7. Anticipatory Waivers of Consent for Pediatric Biobanking.
    Hartsock JA, Schwartz PH, Waltz AC, Ott MA.
    Ethics Hum Res; 2019 Mar 02; 41(2):14-21. PubMed ID: 30895753
    [Abstract] [Full Text] [Related]

  • 8. Stakeholder perspectives on the ethico-legal dimensions of biobanking in South Africa.
    Singh S, Moodley K.
    BMC Med Ethics; 2021 Jul 01; 22(1):84. PubMed ID: 34210291
    [Abstract] [Full Text] [Related]

  • 9. Paediatric biobanking: Dutch experts reflecting on appropriate legal standards for practice.
    Kranendonk EJ, Hennekam RC, Ploem MC.
    Eur J Pediatr; 2017 Jan 01; 176(1):75-82. PubMed ID: 27866271
    [Abstract] [Full Text] [Related]

  • 10. Biobanking in the subcontinent: exploring concerns.
    Jafarey AM, Shekhani SS, Shirazi B.
    Indian J Med Ethics; 2017 Jan 01; 2(4):248-254. PubMed ID: 28803222
    [Abstract] [Full Text] [Related]

  • 11. Ethical Challenges for Pediatric Biobanks.
    Tarling TE, Goldenberg A, Ellis A, Chow V, Velenosi A, Vercauteren SM.
    Biopreserv Biobank; 2021 Apr 01; 19(2):101-105. PubMed ID: 33847522
    [Abstract] [Full Text] [Related]

  • 12. Ethical Legal and Social Issues of Biobanking: Past, Present, and Future.
    Bledsoe MJ.
    Biopreserv Biobank; 2017 Apr 01; 15(2):142-147. PubMed ID: 28375760
    [Abstract] [Full Text] [Related]

  • 13. Confidentiality, informed consent and children's participation in the Saudi biobank governance: a comparative study.
    Alahmad GH, Dierickx K.
    East Mediterr Health J; 2014 Dec 17; 20(11):681-9. PubMed ID: 25601806
    [Abstract] [Full Text] [Related]

  • 14. Ethical considerations for biobanking and use of genomics data in Africa: a narrative review.
    Amoakoh-Coleman M, Vieira D, Abugri J.
    BMC Med Ethics; 2023 Dec 05; 24(1):108. PubMed ID: 38053109
    [Abstract] [Full Text] [Related]

  • 15. Taiwan Regulation of Biobanks.
    Fan CT, Hung TH, Yeh CK.
    J Law Med Ethics; 2015 Dec 05; 43(4):816-26. PubMed ID: 26711420
    [Abstract] [Full Text] [Related]

  • 16. Biobanking and deceased persons.
    Tassé AM.
    Hum Genet; 2011 Sep 05; 130(3):415-23. PubMed ID: 21706182
    [Abstract] [Full Text] [Related]

  • 17. Biobanking, digital health and privacy: the choices of 1410 volunteers and neurological patients regarding limitations on use of data and biological samples, return of results and sharing.
    Giannella E, Bauça JM, Di Santo SG, Brunelli S, Costa E, Di Fonzo S, Fusco FR, Perre A, Pisani V, Presicce G, Spanedda F, Scivoletto G, Formisano R, Grasso MG, Paolucci S, De Angelis D, Sancesario G.
    BMC Med Ethics; 2024 Sep 27; 25(1):100. PubMed ID: 39334200
    [Abstract] [Full Text] [Related]

  • 18. Accountability, governance and biobanks: the ethics and governance committee as guardian or as toothless tiger?
    McHale JV.
    Health Care Anal; 2011 Sep 27; 19(3):231-46. PubMed ID: 21938513
    [Abstract] [Full Text] [Related]

  • 19. Regulating biobanking with children's tissue: a legal analysis and the experts' view.
    Kranendonk EJ, Ploem MC, Hennekam RC.
    Eur J Hum Genet; 2016 Jan 27; 24(1):30-6. PubMed ID: 25873015
    [Abstract] [Full Text] [Related]

  • 20. Perception of Polish patients with cancer of the ethical and legal issues related to biobank research.
    Domaradzki J, Czekajewska J, Walkowiak D.
    Oncologist; 2024 Jul 05; 29(7):e887-e898. PubMed ID: 38666716
    [Abstract] [Full Text] [Related]

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