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PUBMED FOR HANDHELDS

Journal Abstract Search

227 related items for PubMed ID: 39234078

  • 1. Long-term distress throughout one's life: health-related quality of life, economic and caregiver burden of patients with neurofibromatosis type 1 in China.
    Liang W, Cao S, Suo Y, Zhang L, Yang L, Wang P, Wang H, Wang H, Bai G, Li Q, Zheng J, Jin X.
    Front Public Health; 2024; 12():1398803. PubMed ID: 39234078
    [Abstract] [Full Text] [Related]

  • 2. Impact of neurofibromatosis type 1 with plexiform neurofibromas on the health-related quality of life and work productivity of adult patients and caregivers in the UK: a cross-sectional survey.
    Yoo HK, Porteous A, Ng A, Haria K, Griffiths A, Lloyd A, Yang X, Kazeem G, Barut V.
    BMC Neurol; 2023 Nov 23; 23(1):419. PubMed ID: 37996843
    [Abstract] [Full Text] [Related]

  • 3. What is the relationship between health-related quality of life among scoliosis patients and their caregiver burden? A cross-sectional study in China.
    Shi Z, Mao Z, Xue S, Chen G, Li S.
    BMC Psychol; 2023 Oct 19; 11(1):346. PubMed ID: 37858224
    [Abstract] [Full Text] [Related]

  • 4. Economic burden and quality of life of caregivers of patients with sickle cell disease in the United Kingdom and France: a cross-sectional study.
    Besser M, O'Sullivan SB, Bourke S, Longworth L, Barcelos GT, Oluboyede Y.
    J Patient Rep Outcomes; 2024 Sep 26; 8(1):110. PubMed ID: 39325265
    [Abstract] [Full Text] [Related]

  • 5. Health-related quality of life in type 1 diabetes mellitus pediatric patients and their caregivers in Spain: an observational cross-sectional study.
    López-Bastida J, López-Siguero JP, Oliva-Moreno J, Vázquez LA, Aranda-Reneo I, Reviriego J, Dilla T, Perez-Nieves M.
    Curr Med Res Opin; 2019 Sep 26; 35(9):1589-1595. PubMed ID: 30964364
    [Abstract] [Full Text] [Related]

  • 6. Peanut allergy impact on productivity and quality of life (PAPRIQUA): Caregiver-reported psychosocial impact of peanut allergy on children.
    Acaster S, Gallop K, de Vries J, Ryan R, Vereda A, Knibb RC.
    Clin Exp Allergy; 2020 Nov 26; 50(11):1249-1257. PubMed ID: 32866989
    [Abstract] [Full Text] [Related]

  • 7. A quantitative cross-sectional study of the burden of caring for patients with Lennox-Gastaut syndrome, Dravet syndrome, and tuberous sclerosis complex-associated epilepsy in Japan.
    LoPresti M, Igarashi A, Sonohara Y, Bowditch S.
    Epilepsy Behav; 2024 May 26; 154():109741. PubMed ID: 38555725
    [Abstract] [Full Text] [Related]

  • 8. Influence of the child's perceived general health on the primary caregiver's health status.
    Verstraete J, Ramma L, Jelsma J.
    Health Qual Life Outcomes; 2018 Jan 10; 16(1):8. PubMed ID: 29321017
    [Abstract] [Full Text] [Related]

  • 9. Assessing the impact of caring for a child with Dravet syndrome: Results of a caregiver survey.
    Campbell JD, Whittington MD, Kim CH, VanderVeen GR, Knupp KG, Gammaitoni A.
    Epilepsy Behav; 2018 Mar 10; 80():152-156. PubMed ID: 29414545
    [Abstract] [Full Text] [Related]

  • 10. The humanistic burden of advanced non-small cell lung cancer (NSCLC) in Europe: a real-world survey linking patient clinical factors to patient and caregiver burden.
    Wood R, Taylor-Stokes G, Smith F, Chaib C.
    Qual Life Res; 2019 Jul 10; 28(7):1849-1861. PubMed ID: 30825160
    [Abstract] [Full Text] [Related]

  • 11. Burden Among Caregivers of Pediatric Patients with Neurofibromatosis Type 1 (NF1) and Plexiform Neurofibroma (PN) in the United States: A Cross-Sectional Study.
    Yang X, Yoo HK, Amin S, Cheng WY, Sundaresan S, Zhang L, Duh MS.
    Neurol Ther; 2022 Sep 10; 11(3):1221-1233. PubMed ID: 35679001
    [Abstract] [Full Text] [Related]

  • 12. Health-related quality of life and caregiver burden of pediatric patients with inborn errors of metabolism in Japan using EQ-5D-Y, PedsQL, and J-ZBI.
    Konomura K, Numakura C, Nakamura-Utsunomiya A, Hoshino E, Tajima G, Kobayashi H, Nakamura K, Shimozawa N, Bo R, Shiroiwa T, Shigematsu Y, Fukuda T.
    Qual Life Res; 2024 Dec 10; 33(12):3323-3333. PubMed ID: 39230839
    [Abstract] [Full Text] [Related]

  • 13. Social/economic costs and health-related quality of life of mucopolysaccharidosis patients and their caregivers in Europe.
    Péntek M, Gulácsi L, Brodszky V, Baji P, Boncz I, Pogány G, López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada-de-la-Paz M, Taruscio D, Iskrov G, Schieppati A, von der Schulenburg JM, Kanavos P, Chevreul K, Persson U, Fattore G, BURQOL-RD Research Network.
    Eur J Health Econ; 2016 Apr 10; 17 Suppl 1():89-98. PubMed ID: 27062257
    [Abstract] [Full Text] [Related]

  • 14. How useful is the EQ-5D in assessing the impact of caring for people with Alzheimer's disease?
    Reed C, Barrett A, Lebrec J, Dodel R, Jones RW, Vellas B, Wimo A, Argimon JM, Bruno G, Haro JM.
    Health Qual Life Outcomes; 2017 Jan 21; 15(1):16. PubMed ID: 28109287
    [Abstract] [Full Text] [Related]

  • 15. Fragile X syndrome: economic burden and health-related quality of life of patients and caregivers in France.
    Chevreul K, Berg Brigham K, Brunn M, des Portes V, BURQOL-RD Research Network.
    J Intellect Disabil Res; 2015 Dec 21; 59(12):1108-20. PubMed ID: 26369667
    [Abstract] [Full Text] [Related]

  • 16. Measurement properties of the EQ-5D-Y-3L, PedsQL 4.0, and PROMIS-25 Profile v2.0 in pediatric patients with spinal muscular atrophy.
    Xu RH, Zhao Z, Mao Z, Wang S, Xiong H, Dong D.
    Health Qual Life Outcomes; 2024 Jun 27; 22(1):50. PubMed ID: 38937825
    [Abstract] [Full Text] [Related]

  • 17. Quantifying the burden of caregiving in Duchenne muscular dystrophy.
    Landfeldt E, Lindgren P, Bell CF, Guglieri M, Straub V, Lochmüller H, Bushby K.
    J Neurol; 2016 May 27; 263(5):906-915. PubMed ID: 26964543
    [Abstract] [Full Text] [Related]

  • 18. Economic burden and health related quality of life of ultra-rare Gaucher disease in China.
    Qi X, Xu J, Shan L, Li Y, Cui Y, Liu H, Wang K, Gao L, Kang Z, Wu Q.
    Orphanet J Rare Dis; 2021 Aug 11; 16(1):358. PubMed ID: 34380529
    [Abstract] [Full Text] [Related]

  • 19. Measurement of Health-Related Quality of Life in Individuals With Rare Diseases in China: Nation-Wide Online Survey.
    Xu RH, Ng SSM, Luo N, Dong D, Zhang S.
    JMIR Public Health Surveill; 2023 Oct 31; 9():e50147. PubMed ID: 37906229
    [Abstract] [Full Text] [Related]

  • 20. Social/economic costs and quality of life in patients with haemophilia in Europe.
    Cavazza M, Kodra Y, Armeni P, De Santis M, López-Bastida J, Linertová R, Oliva-Moreno J, Serrano-Aguilar P, Posada-de-la-Paz M, Taruscio D, Schieppati A, Iskrov G, Gulácsi L, von der Schulenburg JM, Kanavos P, Chevreul K, Persson U, Fattore G, BURQOL-RD Research Network.
    Eur J Health Econ; 2016 Apr 31; 17 Suppl 1():53-65. PubMed ID: 27048374
    [Abstract] [Full Text] [Related]

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